My wife and I cannot not have children on our own. That was devastating when we found out and it changed the course of our lives. Having babies is free right? Should be easy, right? Or so I thought.

Now, we were searching for solutions. Regardless of the sad news of us not able to conceive, we decided on egg donation. The reason why is so that my wife and I can experience the beauty of the birth experience. We also wanted to experience the joy of watching as a baby emerge from her womb, crying for protection, then quieting down when being cradled in my arms.

None of that would happen now. We used the services of Dr. Aykut Bayrak at the Pacific Reproductive Center in Glendale, Ca.  When getting ready for IVF the donor must go through a series of blood test, one of them is HIV.

We had selected our donor from a website. I wanted my wife to select someone who looked just like her. We found a beautiful young lady named Amber, who looked like my wife when she in her 20’s. We thought we could not lose with Amber because she was an experienced donor, whose contributions resulted in several infants. We were excited and confident.

Then Labcorb came into the picture. When Amber’s blood test was given to Lab Corp for HIV testing the result came back ‘positive’. At first we were shocked!  With a result of being HIV resulted her being automatically canceled as our donor. So what is the real problem here. SHE WAS NOT HIV POSITIVE! When she re-took the test it showed that she was HIV negative. We were relieved for Amber, but the Lab Corp result cost us a couple thousand of dollars for Amber’s tests, medicine, and care during this process. All for naught. Because of Federal rules that any donor who tests positive for HIV cannot donate their eggs, even if she test HIV negative later.

So we were forced to search for another donor. We found one whose eggs eventually failed to produce. Amber was the perfect donor since she was experienced and had proven results. The donor was someone not experienced. With the second donor we ‘ordered’ the Dr. Bayrak not to use Lab Corp. If he refused, we would have fired him on the spot and simply found another fertility clinic to work with. He complied and another lab was used.

The Lab Corp result may not have directly resulted in us not having children (so far), but three things for sure.

(1) We lost a perfectly good donor in Amber,

(2) We had to financially start over with the same test, medicine, and care for the new donor,

(3) It crushed our spirit.

I will be sure to request any lab professional I deal with, from my doctor or any social worker, that if Lab Corp is involved in their testing, we will simply walk away.

Jim

LabCorp “is now concurrently conducting an investigation and re-processing the samples of the affected customers,” 23andMe told its customers. As a result, 23andMe is “deliberating” …on… “completely automating the sample analysis, and implementing further checks of the data before it gets loaded into customer accounts.” Reading between the lines, it appears that the company no longer has faith in LabCorp’s test results. Based on my personal experiences and that of those posting on this site, LabCorp always claims to be investigating the matter when something goes wrong. I have yet to see something come out of any of their investigations and wonder if they’ll actually do something about it this time.

23andMe is a retail DNA testing service provider that is partially owned by Internet giant Google. They provide the patient a test kit. The patient then collects their own saliva samples and the company sends it to LabCorp for DNA testing. LabCorp provides the results to 23andMe who then provides the results to the patient through their website. They claim that they do not provide medical advice to their patients. 23andMe has recently and suddenly become a target of an investigation by Congress.  As a result, the company announced that it will soon begin providing genetic counseling to new and existing customers.

Here’s what Joan had to say:

Labcorp original blood work returned a positive result for HTLV, Human T-Cell Leukemia Virus.  If you can imagine, I was devastated.  The last two weeks have been awful. This virus is much like HIV;  it’s sexually transmitted, and transmitted through needle sharing and blood transfusions. My doctor also communicated there was no cure. 

I could not imagine where I would have contracted such a disease, but I have been feeling weak and tired, and assumed it was true.   My family and I have been devastated.

My doctor does not trust Labcorp, but since Labcorp is the only approved lab with United Health Care, (shame on United Health Care) he ordered a second test.  In the meantime, he has sent me to numerous other MRI appointments and the like looking for tumors, all at the cost of my insurance company.  Last night, I got the results and the second test was negative for HTLV.  I am grateful that I don’t have HTLV, [if I can trust their second test]; but I wonder if there is someone else out there who does… and does not know. I question Labcorp’s  laboratory process and wonder if they got the blood mixed up. Is it possible that there is a person out there who is positive for HTLV and is unknowingly spreading this death sentence virus to others?  Labcorp is incompetent.

I agree with you… Labcorp sucks!

Joan

New York, NY

Here’s information about this dreadful disease and how devastating it is. Human T-lymphotropic virus type 1 (HTLV-I) causes adult T-cell leukemia in about 2.5% of those persons infected with the virus. The time between acquiring the infection with HTLV-1 and developing disease is thought to be 30-50 years. HTLV-1 also can cause a neurological disease called HTLV-1-associated myelopathy/tropical spastic paraparesis in about 5% of those infected. This is an illness that affects the spinal cord and white matter of the central nervous system. Manifestations include difficulty walking and weakness and stiffness of the lower extremities more than the upper extremities. Bowel and bladder control may be lost. A number of other disorders have been associated with HTLV-1 including inflammation of the joints or eyes. HTLV-I is endemic in Japan, the Caribbean, New Guinea and parts of Central Africa. Prevalence is highest in southwest Japan. It is not common in the United States.

Human T-lymphotropic virus type 2 (HTLV-II) may cause neurodegenerative disease such as myelopathy, and it may be associated with hematological malignancies but the association between the virus and these diseases is weak. The virus is endemic in Native Americans in South, Central, and North America.

Enzyme immunoassay screening of serum, with confirmation by type specific western blot, immunofluorescent assay or polymerase chain reaction can be used to determine carrier status and help in confirmation of either HTLV-I or HTLV-II disease. Specific pathological conditions must be present for disease diagnosis.